Jennifer's Cancer Blog

Long time

Hey Guys,

 

It has been a while since I last checked in. I am still dealing with complications from the soft tissue sarcoma I had and have a weird syndrome called Complex Regional Pain Syndrome from when I caught MRSA in my arm. Things have becoming challenging and I have already noticed colour changes and a slight changes. I am doing physiotherpay to stay a head of things.

I am not doing support at work. My memory is questionable with the medicines I am using to cope with. My vision has changed. Otherwise I am healthy. My place of work has started recommending to me that I go on a leave and go on disability. It has been very stressful dealing with what I want and keeping my job.

 

Anyways,

 

Love you all

3 people sent you a hug.
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So sorry things are rough. Sending hugs, love, and prayers
Thomas likes this comment
*soft paw* It's wonderful to hear from you, but we're so sorry to hear these difficulties you are facing. From memory, your workplace was very supportive of you ... we're saddened to hear this may no longer be the case. Good to hear you are being proactive though and doing the physio - we hope this is successful in keeping you as limber and pain-free as possible. Keep in touch as you can, and know we care about you. Hugs xx :*)
Marcia likes this comment
I love you Thomas! Take care of my girl Stella up there.
Thomas likes this comment
*waves to his beloved Aunty from his pink fluffy cloud* I'm meeting Stella for lunch at the All Day BBQ *licks lips* then we're joining our pals for a woogling session on the Common, maybe splash about in the pond then a snooze in the celestial sunbeams 'til dinner time *thumping tailwags* Stella told me she is sending you kisses in rain this week xox :*)
Marcia, Jennifer like this comment
Awww, tears of joy. I miss both of you but I'm so grateful that you can still visit with us! Lol, Stella loves BBQ! 😘
Thomas, Jennifer like this comment
You are too young to feel so crappy. I wish I could take some of that pain, seriously. But I'm not an empath. why don't you take that leave? Pretty soon the weather will be getting cold and snowy. Try it. But I know you enjoy working so it's a tough call. Has your vision gotten worse? I'm wondering if the Rx's didn't give you premature cataracts?
Thomas, Jennifer like this comment
So sorry you are still going through difficulties. I know you really want to keep working, but have you considered the disability and doing something part time, that you would really enjoy?
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The cursed month.

The most frustrating part of life is not knowing. I'm sorry for the radio silence. I have been reading along and checking in. February is our bad month historically. It's an operation/ treatment/ diagnosis/ hospitalization/ death month for us. Bad luck or bad juju month. It's also my birth month, the month we met for the first time. It's hard to explain, but it sucks.

 

So an update about me. New diagnosis? 

 

I have been back and forth with my doctor, massage therapist, physiotherapist and now she speculates that the pain is CRPS. I have started treatment for that. I have not had any diagnostic imaging done on my arm. CRPS explains the excruciating pain I experience now. I sometimes get really overwhelmed from it. There's no place to cry since I am never alone. Iain can empathize but I can't tell him how it feels like I am being cut open again or my arm has been scalded or burned. He can generally tell when it flushes or changes temperature. But he doesn't know. My next step is pain management. I'm not a fan of it. Members of my family have addiction issues. I thought maybe nerve transpotition, an operation. Or more rehabilitation. I have not sat him down. And I don't want to do this in February.

 

I'm going to try using a feature in my benefits plan called best doctors. However I am worried it may offend my GP. I really respect my doctor and she cares for me. What do you guys think?

I want to take some time to express my condolences to Laren. Barbara encouraged me and imparted so much on me on endurance and kindness. My love to you and your family. You are and have been in my thoughts.

 

All my love,

 

Jennifer

Janay, Nancy sent you a prayer.
Thomas, Janay sent you a hug.
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Hi... I have a question... Is acupuncture something that might bring some relief is that something you've considered before or you have already tried? And if not I was thinking it might be something that you could bring to your arsenal of weapons

I hesitate but none the less wish you a happy birthday and I hesitate only because from the tone of your post things don't sound particularly happy the moment and I don't want you to think that I didn't hear anything that you said... I did... And off the top my head the other thing that might be helpful to you at some point is meditation if you have not tried that yet as some Studies have shown that it can be of assistance in dealing with pain but I digress ... let's get back to back to the birthday

https://youtu.be/R0HE2kS2Lmo

It's just a 15 second little happy birthday just a little funky happy birthday couple of lines hopefully bring a smile to your face

So I could hear a little bit of the distraught this in your voice and
... I have one other little zany YouTube link to share with you and then I will quietly or not so quietly bid you adieu
https://youtu.be/_Fww3VvunH0

Okay all done now
Jennifer likes this comment
Neurological......I hope you are seeing a neurologist for this disease Jenn.
Jennifer likes this comment
Hey...(term of enearment and familiarity, not just for horses) I like your poem that is photographed and the art pic...I have shared them on my facebook page with credit to the artist and the poet...the poem...would probably apply to anyone who has experienced any kind of trauma whether it was cancer, a loss and is grieving, a sexual abuse survivor or any other kind of survivor...it speaks to me and I liked it so wanted to share it around...thank you for sharing it...and please if you have any other nuggets to share I would love to be so gifted (gift receiving)...my wife loved to draw.. and my son and daughter in law just opened a small art gallery in Manhattan...
MasseyKlein.com
anyway... just wanted you to know I appreciate the art and since art is for sharing, that is what I am doing...
and I would also like to know if you are able to use the meditation or the acupuncture to help, how that works out
Love Neal
Jennifer likes this comment
and one more thing.... yesterday was the first of the month...supposed to say RABBIT for good luck..... or BUNNY.. So ..... BUNNY RABBIT ...may this month have some things to dispel its reputation for having not so good things happen....except your birthday of course.... we need to change the color of this month... get out some happy colored pencils and lighten the palette... this is my wish for you...sky blemish blue, azure bliss, petticoat pinks and light passionate purples, fickle fuscia, and opulent orange melon, and tasty lemon, zesty lemon, soft mellow sunshine, lavender rose, victorian blush, just to name a few
Jennifer likes this comment
Thanks for your kind words about Barbara. It’s been hell. You need to be able to scream and yell. Barbara was my rock and I am so alone. But I promised her I would be ok. And you will be too. Don’t worry about offending anyone. It’s not about them!
Jennifer, Neal like this comment
I have changed the gender to be appropriate and include the entire poem here which is Worthy of note in its fight against adversity especially when odds are against you and so your section of the poem was most apropos and the rest of the poem fits in as well some of which perhaps you will also like (and thankfully, she did like it...and so do others)... Whether fighting cancer..or any other demons be they past traumas or chronic diseases....I like these words of strength

It's easy to fight when everything's right,

And you're mad with the thrill and the glory;

It's easy to cheer when victory's near,

And wallow in fields that are gory.

It's a different song when everything's wrong,

When you're feeling infernally mortal;

When it's ten against one, and hope there is none,

Buck up, little sister, and chortle:

Carry on! Carry on!

There isn't much punch in your blow.

You're glaring and staring and hitting out blind;

You're muddy and bloody, but never you mind.

Carry on! Carry on!

You haven't the ghost of a show.

It's looking like death, but while you've a breath,

Carry on, my daughter! Carry on!

And so in the strife of the battle of life

It's easy to fight when you're winning;

It's easy to slave, and starve and be brave,

When the dawn of success is beginning.

But the woman who can meet despair and defeat

With a cheer, there's the woman of God's choosing;

The woman who can fight to Heaven's own height

Is the woman who can fight when she's losing.

Carry on! Carry on!

Things never were looming so black.

But show that you haven't a cowardly streak,

And though you're unlucky you never are weak.

Carry on! Carry on!

Brace up for another attack.

It's looking like hell, but -- you never can tell:

Carry on, woman! Carry on!

There are some who drift out in the deserts of doubt,

And some who in brutishness wallow;

There are others, I know, who in piety go

Because of a Heaven to follow.

But to labour with zest, and to give of your best,

For the sweetness and joy of the giving;

To help folks along with a hand and a song;

Why, there's the real sunshine of living.

Carry on! Carry on!

Fight the good fight and true;

Believe in your mission, greet life with a cheer;

There's big work to do, and that's why you are here.

Carry on! Carry on!

Let the world be the better for you;

And at last when you die, let this be your cry:

Carry on, my soul! Carry on!

by Robert William Service
Jennifer likes this comment
I too wanted to say happy birthday. I have gotten some relief.with acupuncture, meditation, and CBD oil. Sending hugs, love, and prayers
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Vital Info

Posts

November 17, 2015

Click Here

Canada

February 4, 1984

Cancer Info

Sarcoma

November 15, 2015

Stage 1

Grade 3

Hysterectomy

gofundme.com/jafchek4

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Starting off alone. Not having domain over my own body. Getting weaker. Being left in the dark by doctors

Don't take stuff or people for granted.

gofundme.com/jafchek4

First Cancer was Endometrial Cancer -Very heavy bleeding -Abdominal pain -Fullness -Fatigue -Edema Sarcoma (2017) Growing lump on elbow pain tingling edema

Progestrone

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